Guess who is free of her bili lights? No more tanning booth! At least for the time being, Leah is no longer under the bili lights, which means no more Mr. Horrible Awful Mask. She seems to enjoy her new-found freedom.
Today we got our longest stretch of kangaroo time to date, and LeahBug didn’t forget to breathe once. She has had a few episodes today, but not while we were holding her! She is now up to 4mL of milk (less than a teaspoon) per hour on continuous feed [through her g-tube]. They’ll keep increasing it gradually, and eventually will transition to feeding in intervals.
Also… sooooomebody kicked her little vial of milk out of its stand with her tiny tiny feet and spilled it all over her little blanket. Sooooomebody did. I’ll leave it at that.
She is just letting you mama’s know what to expect in the future….her way or the highway LOL
You and Sooooooomebody are going to have SUCH FUN together. (Warning: fun may sometimes look like sighs and facepalms.) 😀
I love all of this news. Explain to me please- is the esophageal atresia incomplete and so that’s why she can take breastmilk orally? Trying to understand it all…
She is just perfect! So beautiful!
XO
Oh, no, sorry, I should have clarified. No, the esophageal atresia is totally complete. She is receiving the breast milk through her g-tube, which was placed a few days ago, so it’s going directly into her stomach. She is not able to take anything in by mouth, and has to have the suction tube down her throat since even saliva has no place to go when she swallows.
Okay, so just reread that the milk is via g- tube. Got a bit ahead of myself. Sorry : / We just love how cute and alert she is : )
Nah, you didn’t miss it – I went back and added that it was through the g-tube. If people haven’t been reading all along they might not know!
One more exciting thing happened today! Gran changed her poopey diaper and loved every minute of it….I never thought that I would be so excited to change a diaper. I love my little Leah girl!