Sunday update

Not much has changed. Leah is still under heavy sedation and hourly paralytics. It doesn’t sound like the dosage has changed again, but she definitely starts stirring toward the end of the hour. Even as I type this, I can see her hand twitching as 5PM (the next dose of paralytic) approaches. (I just had to go get the nurse to administer the paralytics almost 10 minutes early because she was really starting to move. Oy vey. This child.)

Earlier today Leah started desatting a bit (reduced oxygen saturation in her blood) and it appears she had some fluid in her lungs. They did some interventions and a chest x-ray, and she seems to be back on track now. Her O2 from the vent had been increased from 24% to 30% but it’s down to 25%.

The plan is still to start weaning her off of the paralytics tomorrow, but she may still be under sedation until they take her off the vent. We will have to see how things go and how much she moves when she’s just under sedation without paralytics. It may be that they keep her down a little longer. The nurses move her arms and legs so that she gets some circulation and movement, and the surgeons just cleared them to move her a tiny bit from side to side.

Will keep you posted when there is something to update.

9 thoughts on “Sunday update

  1. Even when she’s knocked out you can’t rest can you? Heal little Leah, heal…..Love and hugs and kisses to you all XOXOXOXOX

  2. I’ll be praying for that healing and for her to stay still while she has to. She’s a strong little baby and she wants to move all the time> You can do this Leah only for a little longer sweetie. And Mommies you hang in there she will be better and out of her sedation soon. I know it’s hard but you are strong women and God will get you through this and all be be right again. Then you can take her home soon.

  3. I am so glad for the update and to hear how well Leah is doing! It is wonderful that they are moving toward no paralytics soon — I hope she will stay still and heal carefully and completely! You are all three amazing!!! You must be exhausted, Mommies! Take good care!

  4. Good news, thanks for sharing with us and keeping us up to date. You know, we’re going to expect you to continue giving posts until she’s home and 25 yrs. old. I can only speak for myself but I am vested wholeheartedly in this child! Get some rest.

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