Let’s see… where did we leave off? Ah, yes. BabyBug had just gone to the ER and had emergency oxygen delivered because there was no order. And then poop. Ha.

So. On Saturday we had a few more visitors, including Faith and Matt as well as our friend Jennie, who has been living in Boston for almost four years and re-relocated to Los Angeles over the weekend. There were two outside groups at RMH on Saturday – one preparing a meal for the families (they call these “meals of love,” formerly known as “happy meals”), and one setting up a little village as part of the house’s Christmas decorations. I’m not a big fan of Christmas decorations as a rule, but the little village is pretty cool – and little cartoon characters make cameos throughout the display. I’ve posted pictures below.

On Sunday, my dad visited too, as well as our cousins. Sunday was another day of excitement. In the morning, my dad came to visit and we all went over to the other house for a “meal of love” breakfast, and just as we were getting ready to go back to the house where we’re staying… Madame Butterball’s g-tube fell out. AGAIN. I raced back to our room and got supplies ready and we reinserted the tube. Instead of taking her to the ER, we called the peds unit and asked how we could get ahold of the surgical residents so that we could avoid a trip to the ER. At the same time I mentioned the whole oxygen mixup. The charge nurse said she would follow up, and shortly thereafter we got a call from a doctor who just went over what happened and told us what to watch for and said we didn’t need to bring her to the ER. YAY. A few hours later… the medical supply company attempted to deliver Leah’s oxygen. All of it. To Ronald McDonald House. Whoops. We got enough to last us until we head home, and we’ll have to call and request the proper tank sizes once we get there. We have the medium-sized tank here as a stationary tank and there’s no way we could move it – never mind the large one.

Whew. So that was Sunday.

Monday was my very first day alone with BabyBug; until now it’s been the three of us, since Leah got out just before Thanksgiving, but it was time for Mandy to go back to work. Leah and Mama managed to get through the day just fine, aside from a little bit of tardiness to Leah’s doctor appointment (the shuttle company was short a driver yesterday). The general consensus regarding Leah’s g-tube is that it is probably coming out more frequently because she’s on continuous feeds. The RNP also increased the amount of water in the balloon. We have to keep her on continuous feeds until the methadone wean is completed to avoid more projectile vomiting episodes, but that’s just another couple of weeks and then we can work on getting her to consolidated feeds. And then hopefully the g-tube will stay put.

Other than the appointment, the day was pretty uneventful – no g-tube outages, just a bunch of crankpot antics. I was still exhausted from yesterday when we hit last night. I think I was up until about 2AM with Leah last night because she has been suuuuuuper fussy these past few days. I think it’s a combination of teething (normal baby thing) and withdrawal from methadone (not normal baby thing). Poor bunny.

Today Gran drove Leah and me to an appointment (mine, not hers) and then Leah got to have her first grocery shopping experience so that Gran and Mama could grab a bite to eat. Leah LOVES the stroller so it was perfect – the store is huge so we just walked around and around with her so she could drift off to sleep. Yay for naps! Leah remains cranky today – her dose just went down again and she is PISSED.

And that’s our story for the past few days: Wee fussbudget. We’ll take advice – for teething or for withdrawal. Thanks in advance!

For those of you who have been asking… we will go home on Sunday. We’ll be back plenty – the kid has 10 appointments in the next 30 days and that will go up – but it will be nice to be at HOME home. I’m sure Leah will love her kitty brothers. I’m not sure they will feel the same.

A collage from Aunti Staci.

A gift from the nice people who brought lunch for the families on Saturday.

Buggy the Vampire Slayer. Are we precious or are we precious?

“Grrrrr! Argh!”

Buggy and Jennie

More Buggy and Jennie

Buggy and Mommy

A mystery-animal lovey that Leah received as a gift. I call him Ponysaurus. She adores him!

Yup. Adores him.

“Look, everyone! I haz a pretty blankie from Binkeez For Comfort.”

Pretty in her pink Binkeez.

“OMG SNOWMAN!”

“OM NOM NOM SNOWMAN!”

“I win the snowman!” Mommy Mandy made him. He jingles! I call him the Sno-Worm because he looks kind of like a Glo-Worm.

Chanukah display

The village

Looney Toons

The Mickey Mouse House with caroling Looney Toons

More village

Sesame Street

The Mickey Mouse House

The whole village

Nomming on the paci.

This will be so much less cute in a couple of years.

Tummy time!

Comfy with our Binkeez.

Cute with our Binkeez.

Pissy with our Binkeez.

“Grrrrr, Mama! I’m a tough baby!”

Hi Mommy!

“I think I’d like to nom on a finger.”

“I want your thumb, please.”

“WANT MOMMYTHUMB NOW! RAWR!”

Believe it or not, this outfit (cute terry dress and black leg warmers) is totally practical. We put this on her after the g-tube incident so that nothing would be pressing on her belly. She was thoroughly exhausted after the whole ordeal.

They’re so cute when they sleep.

Mama caught someone smiling!

“Four score and seven years ago…”

“Mama, why you callin’ me Abe?”

Cousins! a.k.a. our diaper heroes!

BabyBug draped over Mommy’s shoulder

“RAWR! I GET YOU!”

BabyPie’s new friend Haley sponsored her for a cape from Tiny Superheroes. She had lots of fun being SuperBug. Flying Baby!

SuperBaby collage!

Leah’s furry sidekick, Morgan, who stole Leah’s Chanukah bib (which Great-Grandma Marilyn brought to Thanksgiving) because she needs it to save the world. If you trust what Aunti Staci says, at least.

Sweet little gift Leah received from Joyful Givings – a classic Eeyore and a cute headband!

HI GRAN!!!

We love car rides!

We love sticking our tongue out at Mama.

Wheeeeeee! Diapee change!