Update, finally!

Leah’s about halfway up to full continuous feeds through her g-tube, and after that they can try bolus feeds (all the food at once every 3 hours) like she was getting before. She’s not feeding orally yet, but… her breath smells like milk!!!! Our kid’s breath smells like milk! I’m sure it sounds odd to be excited about that, but who cares? MILK-BREATH BABY!!!!

Leah’s breathing has mellowed out. She’s still working fairly hard and getting a good amount of help, but they no longer have to give her racemic epinephrine treatments, and they were able to take her off of nasal CPAP this morning and put her on regular high-flow oxygen. They’re going to reduce the oxygen level a bit but will wait until morning so that it is easier to monitor her once the change is made. The preliminary blood cultures show no infection but the others aren’t back yet. She still has a nasty cough, but the surgeons seem pretty optimistic that we’ll be able to start working on swallowing this week.

So that’s how the bug is doing! You know, in case you were wondering. 🙂

“Hi Baby!” “HI MAMA!”

“Hi camera!” “HI MAMA!”

“Oh, THAT camera!”

Clearly one of us did not say cheeeeese.

Hippie Baby

“I’M WIIIDE AWAAAAKE”

Nummy delicious Mommyshoulder and Babycheek.

Hello Gran!

We love our fluffy bear-lovie.

“What, what’s that over my head?”

“OMIGOSH, MY MOBILE FRIENDS!!!!”

“Let’s talk, Gran!”

“MMMOooooommmyshoooooulderrrrr”

Leah and Mr. Fly meet again! Reunited and it feels so good…

“Well, hello there, my winged friend!”

It’s exhausting being so cute.