An update and 2,160 thank yous

Let me just say that it’s only been a few hours since our good friend Faith launched our GoFundMe page, and already we are totally floored by your generosity. When Mandy came back from pumping I told her the total raised so far and she got tears in her eyes. You are all amazing and we thank you SO MUCH, both for your generous donations and your kind words of support and encouragement. Leah has some fabulous cheerleaders in all of you.

As we mentioned before, Leah got her first feeding of breast milk today! They will increase the “serving size” gradually over the coming days and weeks until she is at full feeding through the g-tube. Until then, she will receive supplemental nutrients through her PICC line, which was placed last night. The poor little bug has little puncture marks all over her hands and feet, so hopefully with the PICC line placed, she won’t get poked and prodded in quite so many places.

I got to hold Leah again today! Yesterday I relinquished my “turn” at kangaroo time because Leah’s heart rate kept falling while Mandy was holding her and we wanted to get her back to bed. Today we talked to the doctor and she said it’s still okay for us to hold her even if that happens – we should just limit the skin-on-skin time to a certain amount of time until she gets a little better about remembering to breathe. We are holding her hand a lot instead. But today I got my turn. She looked so cozy! It reminds me of that first ultrasound where she had her hand up by her mouth. She’s going to be a thumb-sucker for sure!! We had to wake her up four times while I was holding her, so I only held her for a little while, but it was an awesome little while! She is so precious, and so TINY. She’s still working on her cry, so she makes these little crackly noises that sound like Gollum. “My preeeeshus, my preeeeshus maaaaamas.” We have heard a couple of little squeals out of her. Mostly she scrunches up her face like she’s going to cry but then changes her mind. OH – and check out her little folded ears! I can’t wait ’til her bilirubin levels are normal so they can take that mask off for good. She HATES it and keeps pulling it down, bending her malleable little ears in the process.

Here are some more pictures for your enjoyment:

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This is babybug’s uniform today. She’s ditched a few tubes and cords but it’s still so much. She really dislikes the tube that goes into her esophagus, except when she decides it’s convenient to have a chew-toy right there in-mouth for her enjoyment. Sometimes she sticks her little tongue out around it and it’s quite possibly the cutest thing in the world.

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Could you not just stare at this little face forever?

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Tomorrow’s toeses today, in case I forget.

10 thoughts on “An update and 2,160 thank yous

  1. I’m overly consumed with watching the gofundme page like a hawk. Every few minutes I keep yelling “it went up, it went up!!!”

  2. Baby Leah is just so delicious! I hope that you heal quickly, Mandy, and that you and Lisa will be able to get some good rest. Sending all my love and strength, along with the positive wishes.

  3. As the Gran of Miss Leah I want to say thank you to all of the wonderful people who have given their support to toward her well being! Mandy & Lisa are very lucky to have such wonderful friends in their lives.

  4. Love the great pics! Such awesome moments of a beautiful princess captured! I’m excited for you both and I’m sure Leah is in perfect arms 🙂

  5. I cracked up thinking about her chewing and tongue-poking the esophageal tube. Such adorable mental pictures.

    Continue being awesome, Leah and mamas!

    • PS: Seriously, Miss Leah, that whole breathing thing is a good idea and you shouldn’t slack off on it.

  6. She’s a week old already and I haven’t seen this precious angel… I’m heading to LA on Sunday and will be there Monday also..Gotta see that baby girl live, not just pictures. I’m getting antsy….She is my niece you know and the prettiest little girl every!! love you Leah Valerie and love your mamma’s too! See you soon angel baby….

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