Rough day in BabyLand! I mean, not awful, all things considered – just exhausting for all three of us. Leah had a great dilation this morning. Her stricture started at 15mm and they dilated to 18mm. This is the first time they have ever been able to begin where they left off at the previous procedure. Awesome news.
The not-so awesome news is that Leah wasn’t tolerating any of her feeds – she threw up every time we tried to feed her. She has been gagging all day, even turning bright red at one point. (She also looked like a little tomato when she came out of surgery – bright red in the face!)
Ultimately they don’t see signs of a perforation on her x-rays, but figure that she could probably use a little more rest before she eats again. We can’t take her home unable to eat, so they’re keeping her overnight for observation.
And oh – did I mention that her IV came out TWICE? The first time she kicked it – I looked down to see a little pool of blood around her hand and called the nurse over. The second time I’m not sure what happened.
I felt so bad about that first outage, though – for Leah, but also for the little girl (maybe 8? 9?) who had come by from a few stalls down to ask if the baby had gone into the OR all by herself. Her mom was clearly trying to comfort her by showing her that even the baby was just fine going in by herself. That was definitely not the best moment for her to walk into – screaming baby, blood all over the place… I hope she didn’t see anything. I brought Leah down to the little girl’s stall a few minutes later to show her that Leah was smiling and okay, and to tell her she would be just fine in the OR. These poor kids, having to deal with so much when they’re so small.
Speaking of which, we ran into one of Leah’s NICU friends in Peds today! We are their neighbors. Small world. We knew they were in the hospital overnight but didn’t know we would get placed right next to them on the floor. It was nice to see them – the little girl has grown so much!! She was the only other baby with T21 that we knew about when Leah was in NICU.
Anyway… We are in peds now and Leah is deliriously hungry. She’s so mad. SO MAD. She wouldn’t calm down and ultimately I had to ask them to give her some Ativan, since fighting and crying only burns more calories.
Sleep time. I’m so exhausted.