An actual update

Since we last wrote…

Leah got out of the hospital on July 29. I’m pretty sure my favorite non-Buggy moment in the hospital was from when the GI was in the room talking with me about options going forward. Remember how I said the stuff Leah was spitting up was absolutely foul? The doctors didn’t seem to grasp just how vile it was and I kept trying to find the most descriptive words possible but it didn’t seem to be getting through. At some point the GI doc was concerned that there might be milk in the tube and offhandedly said to the nurse, “Is it milk? Smell it.” AND SHE SAID NO. HAHAHA. I don’t remember which one of us invited him to smell it himself but he did, and he maintained an impressive poker face. Absolutely classic. I would have said no too! She knew what it smelled like. We all did. It was awful! Why put yourself through that deliberately? I was seriously still replaying the scene and giggling to myself for days. “Smell it.” “No!” I’m smiling as I type the story. I hope at least one of you finds the humor in this situation. I swear it wasn’t hospital delirium.

This was my other favorite moment:

SO – yes, Leah came home July 29. She continued to spew yuckies for maybe a week, and then it seemed to be tapering down – but then it got bad again. At this point she doesn’t even always bring something up – just chokes and gags and retches. It’s so frustrating to watch, and I remember how it feels to throw up multiple times every day. It’s exhausting. Exhausting is not even a strong enough word. This kid goes through so much.

On the bright side, here are some exciting things LeahBug has done since she got out of the hospital, in chronological order:

-Sent postcards to Cool Aunti Staci at camp.

-Learned to bang objects together – yay!!!

-Is consistently bearing weight on her feet when we hold her hands! She gets the “LOOK WHAT I’M DOING! I’M SO PROUD OF ME!” face and laughs, just like she did when she learned to sit. It’s so precious you can’t help but laugh with her.

-Listened to her Cool Auntie Erin’s band’s EP in the car.

-Wished a happy birthday to a couple of SuperBaby friends and a “welcome to the world” to a SuperBaby friend who finally busted out of the hospital for the first time since his birth 10 months ago.

-FaceTimed with her six-year-old second cousin for the first time.

-Had a play date with her best friendcousin at the Farmer’s Market.

-Started getting a blended-food formula through her j-tube in addition to her breast milk.

-Went to the Griffith Observatory and slept through the planetarium movie.

-Danced to the new Jason Mraz and Raining Jane album.

-Attended her very first birthday party for kids.

-Served as a Flower Baby in the beautiful wedding of some dear friends to whom Leah led us just before she was born.

-Became a toddler.

-Caught a cold.

That pretty much catches us up to today, which was another long day up at the hospital complex for doctor visits. In addition to what appears to be a cold, Leah also seems to have a bit of an infection of some sort at her g-tube site. They are putting her on antibiotics, which of course turned out to be a variety that can’t be fed through the g-tube, which we didn’t know until we got home. Tomorrow will involve some phone calls… Leah is also getting a second feeding pump and we are going to make an attempt to transition her gradually from j feeds to g feeds. Wish us luck – getting Leah back on g-tube feeds will put us back on the right track moving forward.

Re: toddlerhood… up to this point Leah has generally only really cried when something was physically uncomfortable or painful. But I’m pretty sure that she realized the effectiveness of The Wail while in the hospital, and now we are getting that whenever she gets upset about anything. She is still a very cheerful baby, but in addition to The Wails she has also been whining for long stretches each day. It’s very frustrating because it’s clear she isn’t comfortable but we don’t know what to do for her – mostly it seems like she is a) hot because of the weather and we do what we can to mitigate that, or b) tired and yet adamantly refusing to nap (see video above for a highly-subdued version). The latter is where she has really entered into the realm of toddlerhood, and it contributes to the former because she works herself up into fevers from crying.

In brighter news, would you believe her viral picture reached 1.4 million “likes”? It seems to be tapering off now.

More pictures coming soon.

3 thoughts on “An actual update

  1. You all make my heart happy, and her sweet face makes me realize life is there is good in this world.
    My husbsnd and I are raising two teenage grandsons, a bit troubled at times. People ask us why and I can’t formulate an answer except love.
    I love that you share your precious baby and family with us.

    Pat

  2. Without a doubt Leah should be the star of Jason Mraz’s video. I love that dance-you should send it into Ellen Degeneres-she adores talented kids : )
    In my next life I’d like to be Leah-she’s too cool

  3. Glad the buggity-boo is home at least. She has two fantastic mommies so I have no doubt that she’ll be up and running in no time. Hope the two of you are well also. Plz. give Sharon my love. “C”

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