So! I’m terrible – haven’t blogged in a week! What has been going on? Hm. Leah had another dilation on Thursday. She definitely handled this one better. The previous procedure was performed under fluoroscopy, and I think maybe because that takes longer her recovery was a little bit more difficult. The aftermath of this third dilation was more similar to the first one. They were able to stretch the esophagus to 10mm circumference, up from 9mm the week before. They didn’t go any further as it was already a tight stretch. We are taking this next Thursday off, and Leah will have another dilation on March 6. They also replaced her g-tube with a slightly bigger size (still the AMT Mini-One). I got to meet a couple of the AMT reps since they were at the hospital at the same time and the surgical NP introduced us. Could I resist poking fun at the Mini vs. Mic-Key thing? Of course not. But I told them that Leah met both of them and likes Minnie better – so hopefully that made it okay. 🙂 She has definitely handled the Mini One better than she did the Mic-Key button – she had terrible granulation with the Mic-Key. With the newer, larger Mini we’re seeing a little bit of leakage, but hopefully that will subside once she’s adjusted to it.
We also received the results of Leah’s sleep study this past week. Leah does have mild obstructive sleep apnea, as we thought she might. Because she was already on oxygen to address the suspected sleep apnea, the “plan of action” will remain the same: She will stay on 1/4 liter of oxygen at night. Alas, this means we have to keep putting stickers on her sweet little cheekies. We leave them on for a few days at a time so we don’t have to rip them off every morning, but it’s still so sad to see the red circles on her cheeks when we finally do take them off. She does have such darling little cheekies.
We have been trying desperately to keep LeahBug healthy this week, as Mommy, Uncle Ralph and Auntie Jo all have the plague. Or, you know, a cold. So far I have managed to escape, but I’m not taking anything for granted – Emergen-C and Yin Chiao every day for Mama! I’m convinced that our cat Lobo is responsible for the spread of the plague through our house, since he goes into everybody’s room and demands attention. I’m thoroughly neurotic, so I refuse to touch him while people in the house are sick. At least my 18-lb black cat (Jeepers) is a LITTLE more loyal.
The other new development this week: Leah has discovered “blowing raspberries.” Grab the umbrellas!
I’ll catch a raspberry for you soon – but in the mean time, enjoy these videos:
And now, photos!
OM NOM NOM
A little collage I made for all the new people who liked Leah’s page this past week – nearly 400 in total! A sweet Mama of ADORABLE TWINS with Down Syndrome (like, SO CUTE – you don’t even know. You have to click.) was kind enough to share LeahBug’s link on her boys’ Facebook page, and a whole bunch of people decided to start following the Bug! Yay! More cheerleaders!